Stronger Together

A day in the life of Zainab: caring for Adnan and her family

15.03.21

This week, changemaker Zainab has documented her daily routine in a video diary, to help portray her family life and what it is like to care for her son Adnan, who lives with the rare condition Mucolipidosis Type II.

Mucolipidosis II (MLII) is a slowly progressive lysosomal disorder characterised by growth delay, skeletal abnormalities, facial dysmorphism, stiff skin, and cardiomegaly.

Zainab’s daily routine consists of helping the kids get ready for the day, juggling home schooling and working, going for walks with the family and preparing for meal times. Below you will find Zainab’s day in the life video and you can read her full experience here.

This campaign isn’t just about us – it’s about you. If you live with, or care for someone with a rare disease, share your experience on social media using the hashtag. Help us be heard.
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