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Lucinda’s social series

Lucinda and Nola portrait

This week Lucinda, mother to Nola, highlights her journey to diagnosis…

Posted byiSZok36MITNovember 4, 2020November 13, 2020Posted inUncategorizedTags: SocialLeave a comment on Lucinda’s social series

Jack’s Instagram Q+A

Jack portrait

This week changemaker Jack is carrying out an ‘Ask me anything’ style Instagram Q+A…

Posted byiSZok36MITNovember 4, 2020March 17, 2021Posted inUncategorizedTags: SocialLeave a comment on Jack’s Instagram Q+A

Chloe and Ronnie’s experience of MPS II

Chloe and Ronnie portrait

This week Chloe, mother to Ronnie, talks about her experience of…

Posted byiSZok36MITNovember 4, 2020March 2, 2021Posted inUncategorizedTags: SocialLeave a comment on Chloe and Ronnie’s experience of MPS II

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COVID-19, Co-production and a very Rare year.
Lucinda’s social series
I have a Rare disease and I am crossing borders
The Grey Area – Living with an Invisible Rare Disease
The life and death of a blossoming rose

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