Stronger Together

Rebecca and Hannah portrait Article 09.11.20

COVID-19, Co-production and a very Rare year.

At the end of January this year, my daughter Hannah and I boarded a train to London…

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Lucinda and Nola portrait Social 16.11.20

Lucinda’s social series

This week Lucinda, mother to Nola, highlights her journey to diagnosis…

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Alan's portrait Article 23.11.20

I have a Rare disease and I am crossing borders

I cross many Borders, as a person who happens to have a rare disease…

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Sally portrait Article 30.11.20

The Grey Area – Living with an Invisible Rare Disease

I remember vividly the moment when a passenger got on the bus…

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June portrait Article 07.12.20

The life and death of a blossoming rose

What ails you darling child? Mum would say to me…

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Nicola portrait Article 14.12.20

One Rare Disease. Two Settings.

2017: I once worked at a place where it became a requirement to wear gloves…

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Prabhjot portrait Social 04.01.21

Prabhjot’s social series

To continue our Stronger Together series into 2021, Prabhjot highlights…

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Mel portrait Podcast 11.01.21

Mel’s podcast with Jess from Metabolic Support UK

This week changemaker Mel speaks to Jess Doyle from Metabolic Support UK…

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Emma portrait Article 18.01.21

Educating The Next Generation For A More Inclusive World

Like many disabled people, I’m no stranger to poor access and bad attitudes towards disability…

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Jack portrait Social 25.01.21

Jack’s live Q+A

Check back on 25th January for a link to my Instagram live Q+A.

Coming soon!
Shona portrait Article 01.02.21

Shona’s blog

Check back on 1st February for my blog post.

Coming soon!
Rachel portrait Video 08.02.21

Rachel’s video interview

Check back on 8th February for my video interview.

Coming soon!
Lara portrait Video 15.02.21

Lara’s video interview

Check back on 15th February for my video interview.

Coming soon!
Chloe and Ronnie portrait Social 01.03.21

Chloe’s social series

Check back on 1st March for my social series.

Coming soon!
Karen portrait Podcast 08.03.21

Karen’s podcast interview

Check back on 8th March for my podcast interview.

Coming soon!
Zainab portrait Video 15.03.21

Zainab’s video diary

Check back on 15th March for my video diary.

Coming soon!
David portrait Video 22.03.21

David’s video interview

Check back on 22nd March for my video interview.

Coming soon!

This campaign isn’t just about us – it’s about you. If you live with, or care for someone with a rare disease, share your experience on social media using the hashtag. Help us be heard.
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