Stronger Together

Lucinda and Nola's journey to diagnosis of tuberous sclerosis

16.11.20

This week Lucinda, mother to Nola, highlights her journey to diagnosis of tuberous sclerosis. Follow her experience and our changemakers by searching #IAmNumber17 across social channels.

Below you will see her series of social content, and you can read their full story here.

Lucinda - taking each wave at a time graphic Lucinda - 1 in 12-14,000 statistic graphic

This campaign isn’t just about us – it’s about you. If you live with, or care for someone with a rare disease, share your experience on social media using the hashtag. Help us be heard.
#IAmNumber17

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